Quality indicators in the education of children with Profound Intellectual and Multiple Disabilities
DOI:
https://doi.org/10.25757/invep.v5i2.83Resumen
Todas as crianças, independentemente das suas necessidades, deveriam ter acesso a uma educação de qualidade e a serem incluídas nas suas famílias e comunidades. Esta afirmação inclui as crianças mais vulneráveis, em particular as crianças com dificuldades intelectuais e multideficiência. Os resultados da investigação sobre a educação de crianças com dificuldades intelectuais e multideficiência ainda não produziram até ao momento informação suficiente que possa ser usada para desenvolver indicadores de qualidade para a avaliação das práticas e dos serviços. A investigação nesta área é limitada por constrangimentos éticos, dificuldades na determinação de amostras e desafios metodológicos, sendo reduzido o número de estudos capaz de produzir a informação necessária. Este artigo tem como objetivo discutir fatores que contribuam para a qualidade do envolvimento de crianças com dificuldades intelectuais e multideficiência em atividades educativas, com base na experiência das autoras e na informação disponível que tem sido publicada sobre este assunto. Com base nesta discussão é sugerido um conjunto de indicadores que poderão ajudar os profissionais a dirigir as suas observações para a qualidade da oferta educativa e para aspetos significativos dos desempenhos das crianças quando envolvidas em atividades curriculares.Descargas
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Almqvist, L. (2006) Patterns of engagement for children with and without developmental delay. Journal of Policy and Practice in Intellectual Disabilities, 3, 65–75
Amaral, I. (2003). Analyzing teacher/child interactions: What makes communication successful? DbI Review, 32, 12-18.
Amaral, I., Elmerskog, B., Tellevik, J., Drave, D., Fuchs, E., Farrelly, A., Prain, I. Storani, E., Ceccarani, P., & Skalická, M. (2006). Improving participation and activity for students with multiple disabilities including visual impairments. Bentheim: Wurzburg.
Amaral, I., & Lolli, D. (2011). Communication, experience and movement: a framework for education of children with multiple disabilities including visual impairments. Defectology, (3), 69-78.
Arthur, M. (2003). Socio-communicative variables and behavior states in students with profound and multiple disabilities: Descriptive data from school settings. Education and Training in Developmental Disabilities,38(2), 200-219.
Arthur-Kelly, M., Bochner, S., Center, Y., & Mok, M. (2007). Sociocommunicative perspectives on research and evidence-based practice in the education of students with profound and multiple disabilities. Journal of Developmental and Physical Disabilities, 19(3), 161-176.
Barber, M. & Goldbart, J. (1998). Accounting for failure to learn in people with profound and multiple learning disabilities. In P. Lacey & C. Ouvrey (Eds.), People with profound and multiple learning disabilities. A collaborative approach to meeting complex needs. David Fulton London.
Bobzien, J. L. (2014). Academic or functional life skills? Using behaviors associated with happiness to guide instruction for students with profound/multiple disabilities. Education Research International, 1-12.
Bricker, D., & Cripe, J. J. W. (1992). An activity-based approach to early intervention. Baltimore, MD: Brookes.
Bronfenbrenner, U. (1979).The ecology of human development: Experiments by nature and design. Cambridge, MA: Harvard University Press
Buntinx, W. H., & Schalock, R. L. (2010). Models of disability, quality of life, and individualized supports: Implications for professional practice in intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 7(4), 283-294.
Collins, B. (2012). Systematic instruction for students with moderate to severe disabilities. Baltimore. Paul Brooks.
Davis, P. K., Young, A., Cherry, H., Dahman, D., & Rehfeldt, R. A. (2004). Increasing the happiness of individuals with profound multiple disabilities: Replication and extension. Journal of Applied Behavior Analysis, 37(4), 531-534.
EQAO. The education quality indicators framework Toronto, Canada, retrieved May, 21, 2015 Consultado em http://www.eqao.com/EQI/EQI_Framework.aspx?Lang=E
Granlund, M. (2013). Participation–challenges in conceptualization, measurement and intervention. Child Care, Health and Development, 39(4), 470-473.
Green, C. W. & Reid, D. H. (1996). Defining, validating, and increasing indices of happiness among people with profound multiple disabilities. Journal of Applied Behavior Analysis, 29(1), 67-78.
Green, C. W., Gardner, S. M., Canipe, V. S., & Reid, D. H. (1994). Analyzing alertness among people with profound multiple disabilities: Implications for provision of training. Journal of Applied Behavior Analysis, 27(3), 519-531.
Guess, D., Roberts, S., Siegel-Causey, E., Ault, M. M., Guy, B., & Thompson, B., (1993). Analysis of behavior state conditions and associated environmental variables among students with profound handicaps. American Journal on Mental Retardation, 97, 634–653.
Hostyn, I., Daelman, M., Janssen, M. J. & Maes, B. (2010). Describing dialogue between persons with profound intellectual and multiple disabilities and direct support staff using the scale for dialogical meaning making. Journal of Intellectual Disability Research, 54(8), 679-690.
Ine, H., Heleen, N. & Bea, M. (2011). Attentional processes in interactions between people with profound intellectual and multiple disabilities and direct support staff. Research in Developmental Disabilities, 32(2), 491-503.
Jahiel R. I., & Scherer M. J. (2010). Initial steps towards a theory and praxis of person-environment interaction in disability. Rehabil, 32(17), 1467-1474.
Janeslätt, G., Granlund, M., & Kottorp, A. (2009). Measurement of time processing ability and daily time management in children with disabilities. Disability and Health Journal, 2(1), 15-19.
Lyons, G. (2003). How about a functional curriculum? An alternative approach to the education of students with profound and multiple disabilities. Paper Presented at the 2003 International Congress for School Effectiveness and Improvement, Sydney.
Lyons, G., & Arthur-Kelly, M. (2014). UNESCO Inclusion policy and the education of school students with profound intellectual and multiple disabilities: Where to now?. Creative Education, 5, 445-456.
Maxwell. G. (2012). Bring more to participation. Studies from the Swedish Institute for Disability Research 42. (series No16.)
McWilliam, R. A., & Bailey, D. B. (1995). Effects of classroom social structure and disability on engagement. Topics in Early Childhood Special Education, 15, 123-147.
Munde, V. S., Vlaskamp, C., Ruijssenaars, A. J. J. M., & Nakken, H. (2009). Alertness in individuals with profound intellectual and multiple disabilities: A literature review. Research in Developmental Disabilities, 30(3), 462-480.
Munde, V. S., Vlaskamp, C., Maes, B., & Ruijssenaars, A. J. J. M. (2014). Catch the wave! Time window sequential analysis of alertness stimulation in individuals with profound intellectual and multiple disabilities. Child Care, Health and Development, 40(1), 95-105.
Nafstaad, A., & Rødbroe, I. (1999). Co-creating communication: Perspectives on diagnostic education for individuals who are congenitally deafblind and individuals whose impairments may have similar effects. Dronninglund: Nord-Press.
Nakken, H. & Vlaskamp, C. (2002). Joining forces: Supporting individuals with profound multiple learning disabilities. Tizard Learning Disability Review, 7, 10-15.
Nakken, H., & Vlaskamp, C. (2007). A need for a taxonomy for profound intellectual and multiple disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4, 83-87.
Neerinckx, H., Vos, P., Van Den Noortgate, W., & Maes, B. (2014). Temporal analysis of attentional processes in spontaneous interactions between people with profound intellectual and multiple disabilities and their support workers. Journal of Intellectual Disability Research, 58(8), 721-733.
Nind, M., & Hewett, D. (2012). Access to communication: Developing the basics of communication with people with severe learning difficulties through intensive interaction. London: Routledge.
O’Brien, Y., Glenn, S., & Cunningham, C. (1994). Contingency awareness in infants and children with severe and profound learning disabilities. International Journal of Disability, Development and Education, 41, 231–243.
Oliva, A., & Torralba, A. (2007). The role of context in object recognition. Trends in Cognitive Sciences, 11(12), 520-527.
Orelove F., & Sobsey, D. (1991). Educating children with multiple disabilities: A transdisciplinary approach. Baltimore: Paul H. Brooks.
Orkwis, R., & McLane, K (1998). A curriculum every student can use: Design principles for student access. ERIC/OSEP Topical Brief No. ED423654. Reston, VA: ERIC/OSEP Special Project.
Pretti-Frontczak, K., & Bricker, D. (2004). An activity-based approach to early intervention (3rd ed.). Baltimore: Paul Brooks Pub.
Ridley, S. L., McWilliam, R. A., & Oates, C. S. (2000). Observed engagement as an indicator of child care program quality. Early Education & Development, 11, 143-146.
Rose, D. H., & Meyer, A. (2002) Teaching every student in the digital age: Universal design for learning. Alexandria, VA: ASCD.
Schweigert, P. (1989). Use of micro switch technology to facilitate social contingency awareness as a basis for early communication skills. Augmentative and Alternative Communication, 5(3), 192-197.
Simeonsson, R. J., Huntington, G. S., Short, R. J., & Ware, W. B. (1988). The Carolina record of individual behavior (CRIB): Characteristics of handicapped infants and children. Chapel Hill, NC: Frank Porter Graham Child Development Center, University of North Carolina.
Singh, NLancioni, G., Winton, A., Wahler, R., Singh, J., Sage, M. (2004). Mindful caregiving increases happiness among individuals with profound multiple disabilities. Res Dev Disabil, 25(2), 207-18.
Tellevik, J. M., & Elmerskog, B. (2009): Activity-based intervention for multiple-disabled visually impaired people; The British Journal of Visual Impairment, 27(3), 204-220.
Thompson, B., & Guess, D. (1989). Students who experience the most profound disabilities: Teacher perspectives. In F. Brown & D. H. Lehr (Eds.), Persons with Profound Disabilities: Issues and Practices (pp. 3–41). Baltimore: Paul H. Brookes.
World Health Organization. (2001) International Classification of Functioning, Disability, and Health. Geneva: WHO.
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